A mother’s pain after her 8-year-old son was diagnosed with childhood dementia: “It was the worst day of my life”

Por Carlos Valencia
20 May, 2026

Georgia Nonas, a 29-year-old mother living in Gateshead, England, opened her heart as she recalled the painful moment when she learned the truth about the health of her 8-year-old little boy.

Instagram/@georgianonas

The childhood dementia diagnosis came in July 2021, shattering the family’s plans after it was confirmed that Cody Carroll has Sanfilippo syndrome type A. The hereditary and degenerative condition began to show when he was one year old with ear infections and loss of speech.

Instagram/@georgianonas


His mother, together with Callin, the boy’s father, absorbed the news in absolute silence at the medical clinic, and today the child uses a wheelchair due to the progression of the disease. Georgia cares for Cody full-time and is seeking help from a team in Manchester to stop the epileptic seizures and brain damage he suffers.

Instagram/@georgianonas

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