SIXTEEN DAYS OF DARKNESS AND A CRY OF LIFE: THE AWAKENING OF THE “BUTTERFLY BOY” WHO MOVED THE WORLD
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In the hallways of a hospital in Rio de Janeiro, for more than two weeks, Tayane Granda Ortolan’s world was reduced to a room where her son, Guilherme, just 8 years old, was fighting an uneven battle against pneumonia that plunged him into a deep coma.
Guilherme is known in his community as a “butterfly boy.” He has Epidermolysis Bullosa, a rare genetic condition that makes his skin extremely delicate. Every touch, every movement, can become a wound.
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After 16 days without leaving his bedside, Tayane decided to go home to shower and rest for a couple of hours. It was precisely during that brief interval that Guilherme decided to come back. A phone call changed everything: “Gui has woken up and is calling for you.”