Susan Nagi spent two decades living with rhinoscleroma, an infection so rare that few doctors recognize it at first glance. 🦠 It started in her nose, but spread to her eyes and ended up causing a bulging of her eyeballs that frightens anyone who does not know her story.
The disease cost her dearly: she left her studies unfinished and for years carried the weight of stigma and other people’s stares. She needs major surgery to treat her condition, something she has not been able to afford so far.
Even so, Susan did not hide. She stood in front of the mirror, accepted her face exactly as it is, and built her life as a makeup artist and stylist. 💄 Her story is not about overcoming the disease — it is about refusing to disappear because of it.